Intellectual Disability, a Little Known and Multidimensional Disability

Intellectual Disability, a Little Known and Multidimensional Disability

People with intellectual disabilities walking in the streets

Intellectual Disability, a Little Known and Multidimensional Disability

Intellectual disability, sometimes called mental retardation, affects 1 to 3% of the global population, which represents approximately 6.5 million people in the United States. Who are they? What are their needs? How can we facilitate their participation in society?

We will see in this article that intellectual disability covers a wide variety of profiles, causes and manifestations. And the good news is that all the improvements made for accessibility to other disabilities also benefit people with intellectual disabilities. Which ones in particular? This is what you will find out.

Intellectual disability, mental retardation, what does it mean?

The terms “intellectual disability” and “mental retardation” both refer to a slower than average intellectual development. To be more precise, intellectual disability is the consequence of disorders of intellectual development in interaction with the barriers of the environment.

People with intellectual disabilities face difficulties in two areas:

Intellectual functioning, measured by intelligence quotient (IQ), which includes learning, reasoning, decision-making and problem-solving skills;

Adaptive behaviors, essential for daily life, which involve communication and interactions with others, but also the ability to take care of oneself.

Intellectual disability starts in childhood and is generally stable throughout life. No treatment is available to cure it. However, the consequences of an intellectual disability can be alleviated with specialized support and a suitable environment.

Not to be confused with mental illness or psychological disability! The pathologies at the origin of a psychological disability do not directly affect intellectual capacities but only the ability to mobilize them. However, it is not uncommon for an intellectual disability to be associated with a psychological disability or mental illness. This is particularly the case in 75% of autism spectrum disorders. In addition, people with an intellectual disability are 3 to 4 times more likely to develop a psychological disability than the overall population.

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What accessibility facilities for the intellectual disability?

Like all other disabilities, intellectual disability manifests itself in various forms and to varying degrees. The difficulties commonly encountered in the urban environment concern:

Reading and understanding,

Spatial awareness,

Time awareness,

Decision making,

Communication.

In order to improve access to the environment and to services for people with intellectual disabilities, the following recommendations should be applied:

Signage using colors, symbols and pictograms, 

Staff trained in welcoming people with mental disabilities,

Audio dubbing of visual information, in particular transport announcements,

Simplified maps with photos of the main destinations,

“Easy-to-read-and-understand” information,,

Learning workshops on transport networks,

Mobile applications for orientation, to facilitate communication, to reduce stress, to learn social interactions, etc.

5 Must-Have Apps for People with Intellectual Disabilities

Tactile paths, accessible pedestrian signals (APS) and audio beacons, originally designed for the visually impaired, are also very useful for people with intellectual disabilities. Indeed, soliciting several senses stimulates understanding.

Several degrees of intellectual disability

We speak of intellectual disability from an intelligence quotient lower than 70. As a reminder, the average intelligence quotient in the overall population is 100, the vast majority being between 85 and 115. The IQ does not however reflect the functioning in the environment. This is why the diagnosis of intellectual disability cannot be limited to an IQ test. It must also take into account the capacities of communication and adaptation in the environment.

Many forms of this type of disability are associated with psychological, motor or sensory disorders. These can in some cases complicate the diagnosis and capacity assessment. For example, the evaluation of the intelligence quotient in a deafblind person is almost impossible due to the inadequacy of the testing tools.

85% of people with intellectual disabilities are affected by a mild form. If they benefit from appropriate support in childhood, they are perfectly capable of living independently in adulthood.

The World Health Organization (WHO) distinguishes in its International Classification of Diseases (ICD) six classes of mental retardation, from mild to severe, but also non-specific forms.

Note: the 11th edition of the ICD, published in May 2019, updated the terminology concerning intellectual disability. We no longer speak of “mental retardation” but of “disorders of intellectual development”.

Mild intellectual disability

It is characterized by a slight delay in acquiring language and slower development than the average child. Difficulties usually appear during schooling but can be alleviated through appropriate educational methods. Most people with mild intellectual disabilities are able to lead independent lives as adults and work.

IQ, when it can be measured, is between 50 and 69.

Moderate intellectual disability

It concerns 10% of people with intellectual disabilities and is characterized by a very slow development of comprehension and language skills. In most cases, there is also difficulty performing basic activities of daily living such as washing or dressing. Even though children with an average intellectual disability have significant academic difficulties, some of them manage to learn to read, write and count. In adulthood, they are sometimes able to work, provided the tasks are simple and structured.

IQ, when it can be measured, is between 35 and 49.

Severe intellectual disability

It concerns 3 to 4% of people with intellectual disabilities. The difficulties encountered by people with severe intellectual disabilities are much the same as those with moderate intellectual disability, but to a greater degree. Motor impairments and associated disorders are also more common. These people generally need constant assistance in their daily life.

IQ, when it can be measured, is between 20 and 34.

Profound intellectual disability

It concerns 1 to 2% of people with an intellectual disability. It is characterized by an almost total inability to understand. People with a profound intellectual disability are generally unable to move and their communication is limited to a few non-verbal manifestations. They are unable to control their bodily functions and take care of themselves. They must therefore benefit from permanent assistance.

The IQ is then estimated to be less than 20.

A disability with multiple causes

Unlike other forms of disability that can occur at any time in life, intellectual disability begins in childhood, before the age of 18.

It can be caused by a genetic defect, illness or exposure to alcohol during pregnancy, oxygen deprivation at birth, or certain illnesses or exposures to toxic substances during infancy. Little is known about whooping cough, measles or meningitis can lead to intellectual disability if treatment is delayed. Malnutrition is also a cause of intellectual regression in regions of the world prone to famine.

The three most common causes of mental disability are Down syndrome, 22q11 deletion (otherwise known as DiGeorge syndrome), and exposure to alcohol during pregnancy. There is also a rise in the numbers due to the increase in the number of preterm births.

In more than a third of cases, however, the cause of the intellectual disability remains unknown.

Intellectual disability cannot be treated, but prevention and support measures can limit the consequences.

In conclusion, keep in mind that the vast majority of people with intellectual disabilities live among others. We all therefore have the possibility of helping them to express their full potential by adapting our behavior. If you are responsible for the accessibility of a venue, a transport network or the roads of a municipality, think of all the inexpensive facilities that you can implement to facilitate their orientation and improve their sense of security.

Find out more on accessibility for people with intellectual disabilities with these articles:

What You Need to Do to Ensure Accessibility for Customers with Intellectual Disabilities at Your Venue

9 Tips to Welcome a Person with an Intellectual Disability

Published on January 21st, 2022

media

A man with Down syndrome and another man smiling

Tactile paths, accessible pedestrian signals (APS) and audio beacons, originally designed for the visually impaired, are also very useful for people with intellectual disabilities.

writer

Lise Wagner

Lise Wagner

Accessibility Expert

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powered by okeenea

The French leading company

on the accessibility market.

For more than 25 years, we have been developing architectural access solutions for buildings and streets. Everyday, we rethink today’s cities to transform them in smart cities accessible to everyone.

By creating solutions ever more tailored to the needs of people with disabilities, we push the limits, constantly improve the urban life and make the cities more enjoyable for the growing majority.

5 Must-Have Apps for People with Intellectual Disabilities

5 Must-Have Apps for People with Intellectual Disabilities

A smartphone screen with apps for people with intellectual disabilities

5 Must-Have Apps for People with Intellectual Disabilities

People with intellectual disabilities such as Down syndrome or fragile X syndrome have an intellectual development that’s inferior to the population average and learning difficulties. This means they have trouble conceptualizing, thinking, making decisions and communicating with others. 

In order to better communicate, easily make decisions or even to stay organized, they can rely on numerous apps. Plus, they enable them to remain autonomous and to challenge themselves at their own pace.

Let’s have a closer look at 5 must-have apps for people with intellectual disabilities!

Cozi Family Organizer

A great app to stay in sync with your family! You can set reminders for yourself or any of the family members. This can be helpful for those who need to be driven to medical appointments or work. 

Plus the calendar is easy to use and to comprehend.

You can also create all kinds of to-do lists to make sure all your everyday tasks are organized and set up a meal planner!

Available on Android and iOS

Evernote

Another great app to help you stay organized! With Evernote, you can create to-do lists, capture photos, record voice reminders or simply take notes. And your notes can be searchable. 

Find what suits you best and make sure you don’t miss any events!

Available on Android and iOS

Evelity

An indoor navigation app to help you find your bearings in complex venues. The app perfectly adapts to the user profile and provides optimized routes with easy-to-read and easy-to-understand instructions. 

You can also preview your itinerary to be more familiar with it. 

Besides, its simplified interface makes it easy for you to use. 

Evelity is currently being tested at the Jay Street-MetroTech subway station in New York but it’s also deployed in other sites in France, its country of origin: the whole metro network in the city of Marseilles, the Luma museum in Arles and the medical university campus Rockefeller in Lyon.

Available on Android and iOS

Breathe2Relax

We can all feel stressed from time to time or tiring by our environment. Breathe2Relax teaches breathing techniques to remain calm and serene. 

It helps people with anxiety to relieve their stress.

Available on Android and iOS

Red Panic Button

If at some point you need help, you can hit the Red Panic Button! First when setting this app up, you need to list your contacts who’ll serve as your emergency contacts. People you are comfortable with and can rely on.

When you’re in trouble, the app sends them a SMS containing a Google Maps link with your location.

Available on Android and iOS

Be careful of what you’re being promised

You may have found in your research countless brain-trainings apps to improve your memory and problem solving skills. However, there’s little scientific evidence that demonstrates their effectiveness. Much more research is needed.

For now, it looks like these apps don’t have the power to sharpen your cognitive abilities or prevent any mental decline for those with dementia or Alzheimer’s. But if you feel like trying, a lot of these apps can be both free and entertaining such as Peak, Elevate or Lumosity.

You now have 5 great apps at your fingertips to make your everyday life easier! 

Want to know more about people with intellectual disabilities? Check out our articles:

9 Tips to Welcome a Person with an Intellectual Disability

What You Need to Do to Ensure Accessibility for Customers with Intellectual Disabilities at Your Venue

Public Transport: Accessibility Solutions, Also for the Intellectual Disability!

Published on January 7th, 2022

media

A person is using Evelity on the subway. They're on an escalator.

An indoor navigation app to help you find your bearings in complex venues. Evelity perfectly adapts to the user profile and provides optimized routes with easy-to-read and easy-to-understand instructions.

writer

Carole Martinez

Carole Martinez

Content Manager

stay updated

Get the latest news about accessibility and the Smart City.

other articles for you

share our article!

more articles

How to Foster Inclusive Mobility at Public Transit?

How to Foster Inclusive Mobility at Public Transit?

How to Foster Inclusive Mobility at Public Transit?You probably have heard of inclusive mobility but do you know what it actually means? For public transit all over the world, this notion gets more and more important. And more realistic to implement as many...

Hearing Impaired People: a Multitude of Profiles for Different Needs

Hearing Impaired People: a Multitude of Profiles for Different Needs

Hearing Impaired People: a Multitude of Profiles for Different Needs  Did you know that hearing impaired people have several profiles and that the way they identify themselves is important? You may be familiar with deaf and hard of hearing people but for each of...

NEVER miss the latest news about the Smart City.

Sign up now for our newsletter.

Unsubscribe in one click. The information collected is confidential and kept safe.

powered by okeenea

The French leading company

on the accessibility market.

For more than 25 years, we have been developing architectural access solutions for buildings and streets. Everyday, we rethink today’s cities to transform them in smart cities accessible to everyone.

By creating solutions ever more tailored to the needs of people with disabilities, we push the limits, constantly improve the urban life and make the cities more enjoyable for the growing majority.